Blog
‘Thoughts and prayers’—I’ve come to believe they’re working for me
How do you pray when you’re caring for someone with a progressive, debilitating disease? How do you pray for someone else facing a diagnosis that offers little hope? And, really, why pray at all?
The best advice I’ve received so far: ‘Just let them love you’
No one wants to be less-than. No one wants to need help. But I’m learning that’s a mindset I just need to put behind me.
Glad and sad, and strengthened by the conviction to nurture hope
Report on a wonderful weekend: I’m learning to celebrate the glad while not denying the sad.
Memory is my issue, too. What were our days like before Alzheimer’s?
For many dozens of weeks, I’ve been forming new habits, taking over new responsibilities, and adding more and more items to my subconscious “don’t forget” list. And today I don’t completely remember what it was like before my current state of constant on-call.
The denial game I’m playing: Change my focus? Not me. Not yet
I need slowly (or maybe not so slowly) to come to terms with the realization that caregiving is now my primary duty, not something added on or just accommodated.
Readers offer great alternatives to ‘How is your wife doing?’
When I wrote that “How’s your wife doing?” may not be the most helpful question to ask, I evidently touched a nerve.
A birthday prayer: Even with challenges, so many reasons for gratitude
Happy birthday? I’m not unhappy, but as I celebrate today I’ll focus on a more substantive emotion.
These days I’m discovering—and embracing—a sometimes painful joy
We want to associate “joy” with “happiness,” but anyone coping with loss longs for something deeper. And this joy, when we find it, sometimes comes with pain.
I’m learning to embrace this new calling, the one I never expected
Any of us might seek a calling to something grand and important. But I’ve decided my calling today is the person right in front of me.
Why “take care of yourself” is a challenge for caregivers like me
Many have told me “you must take care of yourself.” I’ve never disagreed, but I’m still figuring out how to do what they’re suggesting.
It’s my problem, so I’ll cry if I want to (w/apologies to Lesley Gore)
Do you cry? I know I’m not the only one who puddles up often. And now that I’m a caregiver, I’m coming to understand what’s behind some of those tears.
My most important coping skill: embracing the beauty of both
“I don’t know if I’m a companion or a caregiver.” “Why choose? Why can’t you be both?” There’s hope and joy for me in that answer.
It was a big step for me finally to wear the label caregiver
I was a caretaker two years before I was willing publicly to wear the label. Today I’m thinking about what taking that step has accomplished for me.
The forgetting gives us an important opportunity. We can remember
Of everything added to my growing list of caregiver duties, to remember feels the most urgent.