Blog
Summer break: What could be better than a visit with family?
If a picture can be worth a thousand words, maybe several pictures can take the place of the 750 or so I write here every Wednesday. Snapshots from a summer visit here . . .
The most surprising advice I’ve received: Look for the humor!
Along with the tears have come several smiles. Even living with Alzheimer’s, I’m learning to nurture a sense of humor.
Another first: a family vacation for me while Evelyn stayed home
I never would have imagined the unparalleled rugged splendor comprising this corner of the Canadian Rockies. And I never would have planned to see it without Evelyn.
The unexpected reason I’m glad to be writing these blog posts
For the sake of memory, I want to share here a couple of the unbidden tributes to Evelyn that have come from readers of this blog.
There’s no future in two little words I’m trying to put behind me
“There’s no future in going down the ‘if-only’ rabbit hole,” she told me. And now, years later, I’m coming to understand what good advice that was.
Here’s a new label caregivers can wear proudly. We are pro-life
Amid all the hubbub about abortion in the national conversation today, I’ve made a decision about myself and several others I know. Caregivers are pro-life.
These songs are just samples of an important way I find encouragement
I’ve formed a playlist called “Comfort.” That’s exactly what I find when I play songs from it.
Only now am I beginning to realize all the work she did for us
As I’ve taken up the duties my wife handled without fanfare, I’m almost overwhelmed with how much I took for granted.
Here’s the book that changed my journey by teaching me about lament
Soon after we received the diagnosis, a friend knew I needed this book. Now I recommend it to anyone I know facing unanswered questions.
‘Home is where the heart is,’ but I can’t always take her there
“I want to go see my parents,” she says, and I grieve a little, because the home she’s seeking just is not there.
Help for you, something new, and then two updates for readers
Let me tell you about the support group I attend and HFC, the foundation that’s making it possible.
‘Thoughts and prayers’—I’ve come to believe they’re working for me
How do you pray when you’re caring for someone with a progressive, debilitating disease? How do you pray for someone else facing a diagnosis that offers little hope? And, really, why pray at all?
Shared story: My journey as a long-distance caregiver, Part 2
When we lose a loved one to death, we experience the year of “firsts”—first birthday, anniversary, Easter, Thanksgiving, and Christmas—without the loved one. But in my journey with Mom, “firsts” have come unexpectedly, at random times, over a four- or five-year period.
The best advice I’ve received so far: ‘Just let them love you’
No one wants to be less-than. No one wants to need help. But I’m learning that’s a mindset I just need to put behind me.
Shared story: My journey as a long-distance caregiver, Part 1
I’ve struggled with four major issues as a long-distance caregiver while watching my mom’s condition deteriorate.
Glad and sad, and strengthened by the conviction to nurture hope
Report on a wonderful weekend: I’m learning to celebrate the glad while not denying the sad.
Shared story: Others walking with us made all the difference
Although my 95-year-old father did not have dementia, he needed our care for the five years he lived in our home. We couldn’t have walked that path without the help of many others.
Memory is my issue, too. What were our days like before Alzheimer’s?
For many dozens of weeks, I’ve been forming new habits, taking over new responsibilities, and adding more and more items to my subconscious “don’t forget” list. And today I don’t completely remember what it was like before my current state of constant on-call.
Shared story: I’m just as committed now as I was 50 years ago
I wrote this poem the night Howard gave me a beautiful diamond, more than 50 years ago. I’m as committed to him today as I was then.
The denial game I’m playing: Change my focus? Not me. Not yet
I need slowly (or maybe not so slowly) to come to terms with the realization that caregiving is now my primary duty, not something added on or just accommodated.